Some families have found it helpful to share their stories to allow professionals to learn from their experiences, with the aim of improving the support that other bereaved families are offered. Child Bereavement UK promotes research studies which we feel are in support of the core aims of the charity, and have met rigorous ethical standards.

Current research studies

The The University of Manchester​ in collaboration with Support After Suicide UK​ (SASP) – the UK’s hub of suicide bereavement organisations – are conducting a national suicide bereavement study.

The research looks into the experiences of people who are bereaved or have been affected by suicide, identifying their experiences For more information and access to the survey, please click HERE.

Nicola Smithers from the University of Northampton is researching for her doctorate about how critical care decisions are made. She is looking to speak to parents about their experience of making these decisions and help from parents with the design of this study. The study has been approved by the NHS Research Ethics Committee. If you have any questions or are able to help please contact Nicola by emailing More information HERE.

Coventry University is aiming to learn about the social skills, early development, and circumstances of those who have died by suicide. Research has shown that difficulties in these areas, increase risk of attempting suicide in the general population. They want to better understand the relationship between these factors, and what can be learned to prevent death by suicide. To participate, click HERE.

Kat Godfrey-Djundja is a Counselling Psychologist in Training at the Metanoia Institute. For her doctorate, Kat is researching into the impact of qualified counsellors/therapists, who are mothers themselves, when working with bereaved mothers. More information HERE.

The University of Sunderland is conducting a study to look at how parents of stillborn babies maintain an ongoing bond or relationship with their baby. They are interested in how any ongoing relationship is expressed, whether it is shared with others, and whether it affects the way parents think about their baby. More information and link here – Continuing Bonds Study

The University of Bath is researching how the feelings of mums whose baby was stillborn or died in the first 28 days of life link with grief. They hope the research will improve support for mothers bereaved through stillbirth or neonatal death. They need bereaved mums whose baby died between 13 months and 3 years ago to complete our survey online or by phone. More information and link here – University of Bath Bereavement Research

  • Childhood Bereavement Study

This study by Staffordshire University needs parents with children aged 3-6 years’ old for a study on how children cope in education when one parent dies. Your participation is voluntary and is a 30-minute interview about your experiences and the involvement of nursery or school staff in helping to support your child. All interview data is collated on a digital device that is password protected.
For further information, please contact Ruth Gill on / 01782 294969
Staff Profile

Researchers at Great Ormond Street Hospital are developing new, less invasive methods for post mortem. With Child Bereavement UK’s support, researchers want to ask parents who have experienced the death of a baby or child what they think about these new methods and whether they are preferable to what is currently available. We understand that this is a difficult subject but your views are vital to moving this work forward.


Brainbox Research is a health and social research organisation currently undertaking research for Elliot’s footprint, a charity dedicated to ensuring that families have the support they need in the aftermath of losing a child. They are asking for parents and families who are willing to talk about their experience of bereavement support. The aim of the project is to improve bereavement services for families who have experienced the sudden death of a child so we want to understand the thoughts, feelings and experiences of bereaved families in and around Leeds.


At the present time there is very little information pertaining to fathers who have experienced the loss of their baby. The National Maternity Support Foundation (NMSF) have commissioned the University of Chester to undertake a study to explore the experiences of bereaved fathers who have lost a baby following a still birth or neonatal death up to six months, following delivery.

Click here to participate: